Research participants’ experiences with return of genetic research results and preferences for web‐based alternatives

Abstract

While there is increasing interest in sharing genetic research results with participants, how best to communicate the risks, benefits and limitations of research results remains unclear.

Document Details

Document Type
Pub Defense Publication
Publication Date
Aug 03, 2019
Source ID
10.1002/mgg3.898

Entities

People

  • Amanda Ganzak
  • Angela R Bradbury
  • Brian L. Egleston
  • Danielle Mckenna
  • Dominique Fetzer
  • Jacquelyn Powers
  • Jamie Brower
  • Jessica M. Long
  • Jill B Gaieski
  • Jill E. Stopfer
  • Kara N. Maxwell
  • Katherine L Nathanson
  • Laura Digiovanni
  • Linda Patrick‐miller
  • Sarah Walser
  • Susan M. Domchek

Organizations

  • American Association for Cancer Research
  • National Institutes of Health Clinical Center
  • Susan G. Komen for the Cure
  • Temple University
  • The Breast Cancer Research Foundation
  • United States Department of Defense
  • University of Chicago
  • University of Pennsylvania

Tags

Readers

  • Defense Acquisition Program Management
  • Systems Analysis and Design

Technology Areas

  • Biotechnology