Addressing Health Literacy with a Tailored Survivorship Care Plan to Improve Access in Underserved African American Prostate Cancer Patients
Abstract
In our previous work, we have documented that health literacy barriers impact the ability of many underserved African American prostate cancer patients to understand cancer treatment and its side effects. To address these barriers, the research team designed a scripted, low literacy educational supplement that demonstrated a statistically significant improvement in understanding of prostate cancer treatment side effects, and a statistically significant decrease in decisional conflict compared to usual care. Our project is a randomized comparative effectiveness study that is a direct extension of these findings. Our study randomizes 150 African American prostate cancer patients, in a 1:1 ratio, to a standard survivorship care plan (SCP)based on the American Society of Clinical Oncology (ASCO) template versus a tailored SCP combined with the low literacy educational supplement. The team has encountered multiple Covid-related delays in the project period. The first major subtask was completed: the subcontract between Dana-Farber Cancer Institute and Emory University was executed in month 12. The completion of this subtask will allow the research team to move forward with crucial next subtasks to achieve the first to fifth major milestones starting with multi-institutional IRB/HRPO approvals and initial data collection in the next reporting period.
Document Details
- Document Type
- Technical Report
- Publication Date
- May 01, 2022
- Accession Number
- AD1174414
Entities
People
- Kerry L Kilbridge
Organizations
- Dana–Farber Cancer Institute