Familial Hypercholesterolemia in the United States: Evaluating a Centralized Cascade Screening Model to Improve Early Diagnosis
Abstract
Cascade (family) screening remains the best method to identify individuals with Familial Hypercholesterolemia. The purpose of this project is to use implementation science methods to test a centralized approach to cascade screening, similar to the most successful program in the world (Netherlands), and assess its cost-effectiveness. Our scope includes two centers in the Dallas, TX, area from which FH patients will be recruited to participate. Thus far, we are nearly complete in developing semi-structured patient and provider questionnaires to assess barriers and facilitators for cascade screening in the US. We have assembled a Panel of Advisors that includes individuals from a diverse backgrounds and expertise to guide the work proposed. In the next few weeks, we will begin interviewing patients and providers. These interviews will be analyzed, and we will then use intervention mapping to adapt a centralized cascade screening model.
Document Details
- Document Type
- Technical Report
- Publication Date
- Sep 01, 2022
- Accession Number
- AD1190759
Entities
People
- Zahid Ahmad
Organizations
- University of Texas at Dallas