Potential VCA Candidates, Caregivers and Providers Motivations, Expectations and Shared Decision Making in VCA
Abstract
Information regarding the medical, surgical, and psychological issues associated with VCA has been gathered from clinicians and patient subjects and analyzed utilizing qualitative research methods and is being curated and incorporated into the conversation aid prototype, paying particular attention to presenting the information in a patient accessible way that facilitates discussion, reflection, and decision making. An oral presentation titled The Application of the Purposeful Shared Decision Making Schema to Hand Transplant Conversations was given at the International Conference on Communication in Healthcare by Ian Hargraves PhD to introduce this concept to the scientific community. We believe that this prototype will serve as a first-in-world structured platform for supporting clinicians, candidates, and caregivers through the hand and face transplant decision-making process. Drawing on Mayo Clinic expertise in transplant medicine and psychiatry, immunosuppressive care, shared decision making, qualitative methods, and human-centered design, we are completing an initial prototype web-based tool that facilitates candidate-clinician hand transplant decision making that addresses the upsides and downsides of VCA, potentially conflicting desires of candidates and other stakeholders, the goals of VCA, the practicalities that need to be problem-solved, and the existential significance of limb-loss and transplant.
Document Details
- Document Type
- Technical Report
- Publication Date
- Dec 01, 2022
- Accession Number
- AD1201610
Entities
People
- Sheila Jowsey-gregoire
Organizations
- Mayo Clinic