Using Administrative Health Data to Identify Patients with NF1 in Ontario, Canada, and to Assess Prevalence, Mortality, and Health Care Utilization Patterns
Abstract
The objective of this study is to develop an algorithm to identify people with NF1 living in the province of Ontario, Canada (population - 14 million), through administrative health databases. This algorithm will be used to study incidence, prevalence, NF1-related mortality and health care utilization patterns of patients with NF1. To estimate the incidence, prevalence and mortality of patients with NF1 in Ontario, Canada. We hypothesize that we can obtain reliable estimates of incidence and prevalence of NF1 in the province which we expect to be within previously published ranges. We also plan to calculate mortality ratios stratified by age and hypothesize that individuals with NF1 have higher mortality ratios compared to the general population. To study the health-utilization patterns of NF1 patients which includes the number of primary care, specialist and emergency visits, outpatient surgeries, hospital admissions, mental health care and pain treatments Compared to a matched cohort of healthy controls, we hypothesize that patients with NF1 will have, on average, significantly more visits at all levels of health care.
Document Details
- Document Type
- Technical Report
- Publication Date
- Jul 01, 2023
- Accession Number
- AD1217538
Entities
People
- Carolina Barnett-tapia
Organizations
- University Health Network