Von Hippel-Lindau Disease: A Rare Familiar Multi-System Disorder and the Impact of the Clinical Nurse Specialist
Abstract
Von Hippel-Lindau disease is a rare-familiar multi-system disorder that predisposes tumor formation. The lesions that most commonly cause morbidity and mortality are renal cell carcinoma, cerebellar and spinal cord hemangioblastomas, retinal angiomas and pheochromocytomas. The genetics, symptomatology, and medical treatments are reviewed. A case study is presented. Often the psychosocial aspects of a complex illness are ignored. The role of the clinical nurse specialist can be instrumental in a positive outcome for the patient and family affected by such rare multi-system disorders.
Document Details
- Document Type
- Technical Report
- Publication Date
- Jan 01, 1993
- Accession Number
- ADA268174
Entities
People
- Margaret M. Mcneill
Organizations
- Air Force Institute of Technology