Psychobehavioral Impact of Genetic Counseling and Breast Cancer Gene Testing in Healthy Women of African Descent
Abstract
Survey 1 has been given to 77 women. Recruitment has been lower than anticipated in this first year for several reasons. First, not until May 1997 were we able to hire an African American genetic counselor. Second, it is recommended that the women undergo ovarian screening. As the Breast Examination Center of Harlem (BECH) does not offer free ovarian screening and a number of our participants do not have health insurance, recruitment was slowed down while we identified hospitals and clinics that provide screening at low or no cost. Third, the number of high risk women attending the BECH clinic has been lower than we expected. We have initiated contacts with other recruitment sites and by recruiting more broadly expect to be able to recruit more high risk women. Fourth, a number of the women recruited from the BECH clinic did not return their questionnaires, we now offer the women the opportunity to make an appointment to complete the questionnaire with the research assistant. As we have been able to address these start up obstacles, we anticipate that recruitment will improve during the remaining years of the study. With the support from this award we have 1 paper in press, and 1 published abstract.
Document Details
- Document Type
- Technical Report
- Publication Date
- Oct 01, 1997
- Accession Number
- ADA340592
Entities
People
- Heiddie Valdimarsdottir
Organizations
- Memorial Sloan Kettering Cancer Center