Establishment of the Fox Chase Network Breast Cancer Risk Registry.
Abstract
The wealth of research regarding the complex interaction of the genetic, biologic and environmental factors associated with breast carcinogenesis offers promise towards better understanding of breast cancer. The progress in molecular genetics provides us with opportunities to expand our knowledge about modifiable causes of breast cancer. The development of the Fox Chase Cancer Center Breast Cancer Risk Registry was proposed to facilitate research in the epidemiologic and genetic predictors of disease and will permit evaluation of the effectiveness of new risk counseling, surveillance and prevention strategies. During Year Three, the following tasks were accomplished: the advisory panel provided direction for the development of disclosure and follow-up counseling protocols; program recruitment continued with a two-fold increase in accrual from the previous year; a third nurses' training program was conducted, and a pilot program for family practice residents was developed and implemented. The majority of the Network institutions have made agreements to participate in the Risk Registry, committing staff and supportive resources to implement the program. Four hospitals will begin implementation, two in the Fall of 1997 and two in 1998. Ongoing educational issues related to genetic test results will continue to be addressed.
Document Details
- Document Type
- Technical Report
- Publication Date
- Oct 01, 1997
- Accession Number
- ADA341293
Entities
People
- Mary B. Daly
Organizations
- Fox Chase Cancer Center