Genetic Counseling for Breast Cancer Susceptibility in African American Women
Abstract
Increasingly, the cultural beliefs and values of participants are being recognized as important factors in genetic counseling. Despite broad recommendations to increase the cultural sensitivity of genetic counseling, such programs have not been developed or evaluated. The objectives of this study are to develop a Culturally Tailored Genetic (CTGC) protocol for high-risk African American women and evaluate its impact on decision-making and satisfaction about BRCAl/2 testing, quality of life, and cancer control practices following BRCAl/2 testing. A secondary objective of this study is to identify African American women who are most and least likely to benefit from CTGC vs. SGC. The first year of the study focused on developing the intervention materials, creating data management systems, and hiring study personnel. The key research accomplishments achieved during the past year include creating educational materials about hereditary cancer and genetic testing specifically for African American women and completing analyses designed to describe cultural beliefs and values among high-risk African American women.
Document Details
- Document Type
- Technical Report
- Publication Date
- Sep 01, 2001
- Accession Number
- ADA398215
Entities
People
- Chanita Hughes
Organizations
- Georgetown University