Natural History of Plexiform Neurofibromas in NF1
Abstract
This report marks completion of the fourth year of this project. The backbone of the study is the recruitment of individuals with NF1 who have plexiform neurofibromas and the use of volumetric MRI to measure the rate of growth of their tumors. Recruitment was significantly delayed by challenges in obtaining IRB approval for the multiple study recruitment sites, although we have developed a stable group of active participating centers. We have demonstrated that volumetric analysis can be accomplished reproducibly, and have a paper in press on this topic.
Document Details
- Document Type
- Technical Report
- Publication Date
- Oct 01, 2002
- Accession Number
- ADA412152
Entities
People
- Bruce R. Korf
Organizations
- Brigham and Women's Hospital