The University of Utah Clinical Genetics Research Program as an NF1 Consortium Site
Abstract
The University of Utah Clinical Genetics Research Program (CGRP) provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium (November, 2005 and April, 2006), participating in all teleconference calls, and active engagement in the development a The University of Utah Clinical Genetics Research Program (CGRP) provided the infrastructure for our site to perform clinical trials within the scope of a consortium to treat multiple medical complications of neurofibromatosis type 1. The U of Utah site executed aims of the overall consortium by attending 2 meetings of the consortium (November, 2005 and April, 2006), participating in all teleconference calls, and active engagement in the development and submission of a clinical trials application to the Department of Defense in August, 2006. David Viskochil served as vice-chair of the Biology Committee, and he organized a symposium of investigators and clinicians who were part of a MPNST (malignant peripheral nerve sheath tumor) Consortium and the MPNST Committee of the NF1 Consortium that convened as a satellite meeting of the full NF1 Consortium meeting in Atlanta in April, 2006. A study coordinator has been hired through the CGRP at the U of Utah to assist in the development of material submitted in the clinical trials grant proposal. No data has been collected.
Document Details
- Document Type
- Technical Report
- Publication Date
- Feb 01, 2007
- Accession Number
- ADA465227
Entities
People
- David H. Viskochil
- David Stevenson
- John Carey
Organizations
- University of Utah