Alaska Native Parkinson's Disease Registry
Abstract
This registry initiates a program of epidemiological assessments of PS among Alaska Natives to study the natural history and clinical management of PS and establishes a database of Alaska native people with PS for public health research and educational purposes. As feasible the prevalence of PS in Alaska Natives may be estimated as well. This registry not only would facilitate future research into PS ebology but also guide health care planning and community education efforts in this population. The proposal takes advantage of a case control study of PS that is commencing in the same population. The registry is designed in two phases. Phase I is a developmental period and is well underway at this time. During this phase we are establishing the data collection and dissemination protocols regulatory submissions are under review for the registry to obtained necessary approvals the registry database is under development and a pilot project in Anchorage will be initiated pending approvals. Phase 2 has not yet begun. It is a period of educational outreach and active statewide data collection on prevalent and incident cases of PS. After Phase 2 ends the registry will be sustained through the Alaska Native Medical Center.
Document Details
- Document Type
- Technical Report
- Publication Date
- Nov 01, 2007
- Accession Number
- ADA478553
Entities
People
- Brian A. Trimble
Organizations
- Alaska Native Tribal Health Consortium