CINRG: Infrastructure for Clinical Trials in Duchenne Dystrophy

Abstract

The Cooperative International Neuromuscular Research Group (CINRG) is a consortium of medical and scientific investigators and centers focused on improving quality of life of neuromuscular disease (NMD) patients by cooperatively conducting clinical research studies in NMD. The CINRG Coordinating Center (CC) is an infrastructure to support the network in conducting study protocols, standardizing clinical trial methodology, data collection and quality assurance, and performing data analyses. In this award period, we have continued to make progress on the revamping of the CINRG quantitative measurement system (CQMS); we have completed sixteen CINRG site visits for hands-on training of site physical therapists as well as monitoring of study procedures and data collection, four new grant applications were submitted, two new protocols were developed, and one manuscript was published. Two additional manuscripts were submitted and several others are in draft form. This infrastructure support yields better overall results in research for improving care in DMD in the largest network of institutions for this disease worldwide.

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Document Details

Document Type
Technical Report
Publication Date
Sep 01, 2013
Accession Number
ADA599521

Entities

People

  • Avital Cnaan

Tags

DTIC Thesaurus Topics

  • Data Science
  • Databases
  • Disease Attributes
  • Genetics
  • Health Services
  • Information Science
  • Measurement
  • Medical Personnel
  • Muscular Diseases
  • Neuromuscular Diseases
  • Quality Of Life
  • Surveys
  • Test Methods
  • Therapy

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