California's Parkinson's Disease Registry Pilot Project - Coordination Center and Northern California Ascertainment
Abstract
The primary goal of this project is to conduct a pilot study for the legally mandated population-based Parkinson's disease (PD) registry in the state of California. This is a collaborative partnership with The Parkinson's Institute (PI), the California Department of Public Health (CDPH) and the University of California-Los Angeles School of Public Health (UCLA). The PI will conduct ascertainment work in Santa Clara County as well as serve as the coordinating center for the pilot project, overseeing the administrative and developmental aspects of the project. PD cases will be identified from legally mandated sources (pharmacists, health care institutions, physicians and other providers) and a secure prototype database will be established. The Pilot Project will be carried out in two phases, the first of which will focus on disease surveillance and registry establishment, while the second phase will address exploratory research aims. Differences in patterns of PD care will be assessed among groups defined by age, gender, place of residence and, as possible, socioeconomic status and race/ethnicity. The value of the registry to stakeholder groups, and the registry cost, will be assessed.
Document Details
- Document Type
- Technical Report
- Publication Date
- Mar 31, 2008
- Accession Number
- ADA625275
Entities
People
- Caroline M. Tanner