Establishment of the Fox Chase Network Breast Cancer Risk Registry
Abstract
The wealth of research regarding the complex interaction of the genetic, biologic and environmental factors associated with breast carcinogenesis offers promise towards better understanding of breast cancer. The progress in molecular genetics provides us with opportunities to expand our knowledge about modifiable causes of breast cancer. The development of the Fox Chase Cancer Center Breast Cancer Risk Registry was proposed to facilitate research in the epidemiologic and genetic predictors of disease and will permit evaluation of the effectiveness of new risk counseling, surveillance and prevention strategies. During Year Two, the following tasks were accomplished: the advisory panel provided guidance and recommendations for ethical, scientific and community practice issues; program accrual continued with 43 families entered into the Risk Registry. A second nurses training and a physicians training were conducted to prepare community providers for their role in cancer risk assessment. Ongoing educational issues were addressed through the development of a mentoring process as well as quarterly inservice training. Expansion of the program to three more Network Hospitals and accrual of families into the registry will continue into Year Three.
Document Details
- Document Type
- Technical Report
- Publication Date
- Oct 01, 1996
- Accession Number
- ADB219365
Entities
People
- Mary B. Daly
Organizations
- Fox Chase Cancer Center